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Sunday, 30 January 2011

Temporary Close Down


Over a week ago a reader, John Medd, commented that there have been too many Jesus And Mary Chain references here recently. Bagging Area is happy to take constructive criticism but time is up on the JAMC ban. In 1991 punk trumpeter Terry Edwards released a cracking e.p. called Terry Edwards Plays The Music Of Jim And William Reid, four trumpet led covers of Mary Chain songs. I posted Never Understand not long after this blog started. This track is Terry's version of The Hardest Walk, where he finds more melody in Jim Reid's vocal lines than anyone knew existed.

Long term readers will know that Mrs Swiss and I are the parents of a disabled child. He has a rare genetic disease, Hurler's Syndrome, one of the MPS set of diseases, which has left him needing two bone marrow transplants before the age of two to keep him alive, various skeletal problems (and major surgery on his back and knees), severe learning difficulties and loads more besides. I.T., twelve now, is having his umpteenth operation on Monday to have a cochlear implant fitted. Born partially deaf in both ears any hearing he had in his left ear was destroyed by meningitis in 2008. The cochlear implant sends digital signals to the brain, a new type of hearing. If the op doesn't work, he's not lost anything really and if it does we may go ahead and do the same in his right ear where he still has some hearing, but copes with severe loss using hearing aids and lip reading. A cochlear implant has to destroy any natural hearing that's left so we can't take the risk of him losing everything by doing the right and the left ears in one go and it not working. They won't switch the implant on for a few weeks, so it's going to be a while before we know whether it's worked or not, and then repeated trips to get the implant sorted and working properly. He'll probably deal with it all fine- he usually bounces back pretty quickly after operations, and while getting used to the implant and a new way of hearing may take some time he'll get to grips with it. It certainly won't stop him talking. It's the rest of us who get battered by these experiences, operations, hospital stays, new proceedures and equipment to get to grips with. Brain surgery obviously carries some risks also.

The Hardest Walk? It might not be the absolute hardest, but the walk from ward to operating theatre with a child who doesn't want to go and is increasingly anxious, hates being anaesthetised and can't fully understand what's happening is far from the easiest walk, and neither is the walk out of the theatre afterwards leaving the anaesthetised boy behind who was kicking and screaming seconds earlier. No matter how many times I've done it, and it's over thirty now, it gets no easier.

So, there won't be much going on round here for a short while. Enjoy Terry Edwards, and see you in a few days.

01 The Hardest Walk.wma

9 comments:

John Medd said...

That can't have been easy to write. I'll be thinking about your son over the coming days. Wishing you and your family all best wishes.

Take care and see you when you get back. John x

Mr A.N. said...

Hope all goes well, and wishing IT a quick recovery -we're thinking of you all.

drew said...

Hope everything goes well SA and the op is successful, Will be thinking of you all.

davy h said...

Hope all goes brilliantly Adam x

Simon said...

Man, one of my biggest fears about having a child was having to go through things like that. Hope all goes well.

Mondo said...

As a parent of two, I can't imagine how tough these times must be for you all. Keep on keeping on Adam..

Art Dept said...

Our thoughts are with you all, hope it goes well.

Ctelblog said...

All best wishes for the op. Your writing is all too on point for painful memories.

AndyW said...

Hope everything goes really well